In case you aren’t following along, I had recently received results from tests and from the tumor board meeting over the phone from a receptionist and was totally confused. I didn’t feel I understood anything from the news as it didn’t mesh with anything I had heard recently. This is not how patients should ever hear information about their health or plans!
Prior to the tests I was told I would have a meeting with the surgeon, who ordered the tests, after the tumor board meeting. That is what I expected and then to just hear over-the-phone basics was a shock! The next I was told to expect was a call from the radiation oncologist’s office to book an appointment. Since I had previously been old there would not be any radiation until far later in my journey, I was a bit freaked out! They called to give me an appointment for yesterday, which they later changed to next week.
On Wednesday I had my appointment with the medical oncologist which had been booked the day I finished chemo two months ago. It was originally to get started on hormone treatment, Tamoxifen. Tom and I went in with no idea what to expect and with memories of our first appointment with her when we were told that I had stage 4 cancer and would not be treated for a cure, but just to manage the cancer.
Without boring you with tons of details, in this face-to-face meeting she was able to explain the results, the plan and the rational in about ten minutes and we left much relieved! The board decided that since the chemo went so well they would switch gears a bit and continue aggressive treatment. So now I’m back to the mastectomy and chemo plan with an additional radiation treatment in Halifax which will directly attack the spot on my rib. When all that is done I will then start hormone treatment with a new drug which has recently been approved. The procedures may be scary, but it is action and that feels good.
So much stress and fear would have been totally avoided if the receptionist told me nothing and just set up an appointment like I was expecting when I called.
Twas the night before chemo and all through the house
not all creatures were sleeping, not just me and my spouse.
The clock at my bedside read quarter to four
and we needed to sleep those three hours more.
I will spare you any more bad parody of Clement Moore’s poem for now! As I write this it is actually the day after chemo, my second treatment, but I had the first line of this going through my head all day on the 27th. It felt a bit surreal to me because, even though only 3 weeks, it felt like forever since the first treatment. So much has happened, most all of it good. I had the procedure to implant the power port last week, and munch of my hair is gone from my head, but other than that things are good. I’ve had visits and dinners with family, my birthday and Christmas and visits with my colleagues at the school.
I did get those three hours more sleep before getting up for a shower and heading off to the hospital with my husband for company and support. My first stop was the blood lab to get a test to see that my blood and platelet count was enough to have the treatment. Then we went for breakfast at the cafeteria, where I got a great bowl of oatmeal without having to worry about cleaning my pot afterwards. I may also have stolen a couple slices of Tom’s bacon.
Next was my oncologist appointment at which we found out that the measurement was down from 17×15 to 13×11! The chemo is indeed doing what it is supposed to be doing. My doctor was happy with this, as were we, and all was well for treatment number two of six. We went home for a bit, with a side stop at the gift shop to buy a cute new purse I had seen last week, since the chemo wasn’t for almost two hours.
The chemo infusion went smoothly and it was awesome to not have vein hunting involved, especially as at about the same time two men across from me had warm blankets wrapped on both arms and then went through numerous attempts to get a vein. They had gauze pads all over their arms before they finally got hooked up! Yeek! All my nurse had to do was clean the skin over the port and stick in a bent type of needle and cover it up and we were off to the races. Complete with waiting for the drugs to be mixed, we were done in two hours and headed home.
The actual news from yesterday’s appointments at the hospital is that I am starting my chemo next Wednesday. Woohoo!
No really, I’m pretty excited that I am finally going to be doing something to counter this assault on my body! I remember when I was first diagnosed and told that chemo wouldn’t be part of it, I was so thankful. I didn’t really like the idea of poisoning myself on purpose or of the side effects making me actually feel ill, which so far I have not. I remember my dad talking about chemo in the early days…a day of poison and then they give you an antidote so you don’t actually die. Hmmm.
Things have changed a lot and they have learned so much more about the disease and treatments! It was actually two years ago today that I watched my dad walk (seemingly totally healthy) into the operating room to have a colonoscopy. When he came to in his room he joked that he wouldn’t be driving anywhere that day! The surgery went well, but in the end he never did drive again. In his eighties, he was not strong enough to recover and died a couple days before Christmas.
OK, so back to me 😉 Other things I didn’t think I would say started with, “I have cancer.” but the ship sailed on that a couple months ago. Since then I have said that a lot, as well as; “I had a CT scan.” “I’m going for a bone scan.” “This MRI was much nicer than the last one.” “That biopsy was easier.” It also includes requesting a central line for treatments and whatever else may need to be given or taken from my veins. I am pretty practical and it makes sense to me, but it is a bit eerie to think about.
Of course there are the ‘bright side comments’ along the way like; “Ooh, I’ve always wanted to be a VIP!” “At least I won’t have to shave my legs for months!” “I get a great rate on hospital parking!” etc.