If you have been following my blog for awhile, you know that I have stage 4 breast cancer and am currently at the very beginning of my treatment. I have had 3/6 chemotherapy treatments with a single IV dose once every 3 weeks. In practical terms, I am at the hospital for part of two days one week and then have around 20 days with no doctor, at least thus far. It is a bit strange dealing with the time between.
First, it isn’t really between as the drugs continue to work for at least a large portion of the time. By the mid-point, I’m told, the chemo has killed off about all the white blood cells and platelets that is going to and the body has a little break and hopefully the blood recovers to somewhere near normal levels. So far (it occurs to me that I say that a lot in all my posts) I have not really felt unwell other than a couple of days right after the treatment and, compared to many on different regimens, I’m getting off really lightly!
This leaves the question of what to do with the time between. As an extrovert, tons of time alone at home is actually not high on my list of circumstances. One thing I have discovered is that scheduling too much stuff can be an issue, one thing per day seems to be lots an I am often quite tuckered out after that.
One might think, if they didn’t know me well, that all this time on my hands would mean that my home is now immaculately clean. So, I’m not upping my housework time! I have several things I do; read, write my blog, participate on cancerconnection.ca, puzzles, meeting people for coffee dates, bullet journaling etc. My adult children have gotten me into Nintendo 3DS games, I am currently addicted to Animal Crossing.
The odd thing is that a sense of time is somehow skewed. I am often taken by surprise in the first ten days after treatment that it is not much farther along. By the same token, however, I am just as likely to be somehow caught unawares when time is come for my next treatment.
I expect what is happening is that, after 28 years working in the school system with its bell schedules and calendars my sense of time passing is largely based on the first day of school, the morning and afternoon bells etc. It is as if I am Pavlov’s dog and nobody is ringing the bell anymore.